Heartfelt to humorous writing is what you'll find here. :o)
I sit in my chair, there's a tear in my eye
just watching the rest of the world
go on by
Question's unanswered, stuff about me
"why God" I ask do I have RSD?
Friends come and go, do they really
do I scare them away cause I have RSD?
my body's so painful,I'm screaming inside
I dont want to play,I just
want to hide
I wont let it beat me this RSD
I'm not going to sit here while it bullies me
Im taking control,wipe
the tear from my eye
I know some day soon that God will reply
My family all tell me I'm special you see
they don't treat me different cause I have RSD
So God if your listening,"This thing RSD?"
I know there's a reason why
you've chosen me.
(daughter has RSD)
"Welcome to Holland"
By Emily Pearl Kingsley
I am often asked to describe the experience of raising a child with a disability to try to help people
who have not shared that unique experience to understand it, to imagine how it would feel. It's like this:
When you're going to have a baby, it's like planning a fabulous vacation trip to Italy. You buy a
bunch of guidebooks and make your wonderful plans... the Coliseum, Michelangelo' s David, the gondolas of
Venice. You may
learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several
hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!", you say. "what do you mean Holland? I signed up for Italy! I'm supposed to be in Italy.
All my life, I've dreamed of going to Italy!"
The stewardess replies, "There's been a change in the flight plan. We've landed in Holland and it
is here you must stay."
The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of
pestilence, famine and disease. It is just a different place. So, you must go and buy new guidebooks. You
must learn a
whole new language. You will meet a whole new group of people you would never had met. It is just a different place. It is
slower-paced than Italy, less flashy than Italy, but after you have
been there while and you catch your breath, you look
around and you begin to notice that Holland has windmills, Holland has tulips, Holland even has Rembrandt. But everyone you
know is busy coming and going from Italy and they're all bragging about what a wonderful time they had there. And for the
rest of your life you will say, "Yes, that's where I was supposed to go. That is what I had planned."
The pain of that will never, ever, ever go away because the loss of that dream is a very significant
loss. But if you spend your life mourning the fact that you didn't go to Italy, you may never be free to enjoy the very special,
the very lovely things about Holland.