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Be Heard!

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Here's another way that you can make a difference in the way RSD is represented.
 
You are encouraged to participate in any (or all) of the following...
 

SPEAK OUT!
 
Contact the Health reporter of your local newspaper or television station.
 
Briefly explain that you have an incurable disease that is only obscured through ignorance. Give a very brief description of what it is and how it affects you. Don't provide too much information at first - just enough to generate their interest. If they decide to interview you, that's when you give them a more detailed description of what RSD is, how it affects you & your loved ones, etc.
 
Be sure to include any informational resources you have, such as website addresses and telephone numbers for further information, local support group meetings, online support groups, and where monetary donations can be made to help find a cure. A good reporter will be sure to include at least one resource.
 
Final thought: Promote awareness, not a sob story. It will grab (and hold) a reporter's and public attention much better if you speak about your of life with RSD in a way that doesn't seem like you're asking for sympathy. 
 
When you get that article published, be sure to send me a copy so I can post it to the website. :o)
 
*** Personal info. should be edited for safety reasons if you wish to have your article published on this website. E-mail rsd_angels2006@yahoo.com for further information.  

Returning to Work or Other Meaningful Activities

The popular perception is that most people who develop CRPS do not
resume their former activities, i.e. employment, competitive athletics,
volunteering, full-time school, etc.   One Dutch study put the figure as
high as 80 percent. In RSDSA’s recent Internet study, sixty percent of
the respondents reported being disabled by CRPS and just 16 percent
reported being employed full-time. 

Yet, some individuals with CRPS do make a successful transition from
disability and resume their former activities or begin new meaningful
activities.  If you have made or are making a successful transition from
being disabled to assuming a new role, we want to share your story so
others may be inspired by your path.

Please e-mail your story to
info@rsds.org.  Thank you.

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Copyright 2006 RSD Angels